- Introduction
- Data Coverage
- Further Details
- Request Access
There is increasing interest in care pathways for acute exacerbations of disease that are safe and avoid hospital admission. A virtual ward is a system where people who may otherwise be admitted receive hospital-led care in their home with observations and reviews completed remotely by a specialist team. A virtual ward for COPD exacerbations has been recommended by NHS England, supported by early evaluation reports and several small studies.
To support the evaluation of this service, the NIHR PSRC Acute Theme and PIONEER have developed a highly granular dataset of 41,419 acute admissions with Acute Exacerbation of COPD. The dataset includes demography, comorbidities, symptoms, serial physiology, assessments, diagnostic codes, imaging, lung function tests, Breeze spirometry, DECAF scores, prescriptions, ward locations and outcomes including mortality, readmissions and follow up. It also contains detailed reviews of the acute care delivered. The dataset covers admissions from 2019 to May 2024 and can be expanded to other timelines if required.
Geography: The West Midlands has a population of 6 million & includes a diverse ethnic & socio-economic mix. UHB is one of the largest NHS Trusts in England, providing direct acute services & specialist care across four hospital sites, with 2.2 million patient episodes per year, 2750 beds & > 120 ITU bed capacity. UHB runs a fully electronic healthcare record (EHR) (PICS; Birmingham Systems), a shared primary & secondary care record (Your Care Connected) & a patient portal “My Health”.
Data set availability: Data access is available via the PIONEER Hub for projects which will benefit the public or patients. This can be by developing a new understanding of disease, by providing insights into how to improve care, or by developing new models, tools, treatments, or care processes. Data access can be provided to NHS, academic, commercial, policy and third sector organisations. Applications from SMEs are welcome. There is a single data access process, with public oversight provided by our public review committee, the Data Trust Committee. Contact pioneer@uhb.nhs.uk or visit www.pioneerdatahub.co.uk for more details.
Available supplementary data: Matched controls; ambulance and community data. Unstructured data (images). We can provide the dataset in OMOP and other common data models and can build synthetic data to meet bespoke requirements.
Available supplementary support: Analytics, model build, validation & refinement; A.I. support. Data partner support for ETL (extract, transform & load) processes. Bespoke and “off the shelf” Trusted Research Environment build and run. Consultancy with clinical, patient & end-user and purchaser access/ support. Support for regulatory requirements. Cohort discovery. Data-driven trials and “fast screen” services to assess population size.
