Resuscitation to Recovery is the national framework to improve care of people with Out of hospital cardiac arrests (OHCA). Despite this, survival rates continue to be around 10%. Recently an OHCA care pathway been developed by the British Cardiovascular Interventional Society, aiming to reduce unwarranted variation in interventional cardiovascular practice for OHCA. However, little research has tracked the care OHCA patients receive along the whole pathway.
To support a better understanding of OHCA care pathways, PIONEER, working with the NIHR Midlands Applied Research Collaboration and West Midlands Ambulance Service, has curated a highly granular dataset of 1588 OHCA events. The data includes demography, comorbidities, initial presentation, serial physiology, assessments, treatment provided both before and after West Midlands Ambulance Service arrival, onward hospital investigations, management and outcomes, including future healthcare use. The current dataset includes OHCA from 2018 to 2022 but can be expanded to assess other timelines of interest.
Geography: The West Midlands (WM) has a population of 6 million & includes a diverse ethnic & socio-economic mix. UHB is one of the largest NHS Trusts in England, providing direct acute services & specialist care across four hospital sites, with 2.2 million patient episodes per year, 2750 beds & > 120 ITU bed capacity. UHB runs a fully electronic healthcare record (EHR) (PICS; Birmingham Systems), a shared primary & secondary care record (Your Care Connected) & a patient portal “My Health”.
Data set availability: Data access is available via the PIONEER Hub for projects which will benefit the public or patients. This can be by developing a new understanding of disease, by providing insights into how to improve care, or by developing new models, tools, treatments, or care processes. Data access can be provided to NHS, academic, commercial, policy and third sector organisations. Applications from SMEs are welcome. There is a single data access process, with public oversight provided by our public review committee, the Data Trust Committee. Contact [email protected] or visit www.pioneerdatahub.co.uk for more details.
Available supplementary data: Matched controls; ambulance and community data. Unstructured data (images). We can provide the dataset in OMOP and other common data models and can build synthetic data to meet bespoke requirements.
Available supplementary support: Analytics, model build, validation & refinement; A.I. support. Data partner support for ETL (extract, transform & load) processes. Bespoke and “off the shelf” Trusted Research Environment (TRE) build and run. Consultancy with clinical, patient & end-user and purchaser access/ support. Support for regulatory requirements. Cohort discovery. Data-driven trials and “fast screen” services to assess population size.
Further information including technical details, coverage, format and standards, provenance and related resources can be found on the link below: https://healthdatagateway.org/en/dataset/935
