The NHS long term plan includes prioritising work to avoid hospital admissions. Emergency admissions are costly and frequently unpleasant experiences for patients. Many hospital admissions could potentially be avoided if there were care pathways available to support the patient before this became an urgent care concern. These conditions are known as ambulatory care sensitive (ACS) and urgent care sensitive (UCS) conditions, but at a systems level, we only have vague tools to identify what an ACS and UCS condition is.
PIONEER, working with HDRUK, has curated a highly granular dataset of 503,154 Emergency Department and inpatient admissions. The data includes admission details, demography, initial presentation, presenting symptoms, investigations, treatments (all, including medicine dose and route), procedures, operations and outcomes. It also includes care process data, including ward stays, clinical review times and the healthcare professionals involved in care decisions. The current dataset includes admissions from 01-10-2021 to 30-09-2023 but can be expanded to assess other timelines of interest.
Geography: The West Midlands (WM) has a population of 6 million & includes a diverse ethnic & socio-economic mix. UHB is one of the largest NHS Trusts in England, providing direct acute services & specialist care across four hospital sites, with 2.2 million patient episodes per year, 2750 beds & > 120 ITU bed capacity. UHB runs a fully electronic healthcare record (EHR) (PICS; Birmingham Systems), a shared primary & secondary care record (Your Care Connected) & a patient portal “My Health”.
Data set availability: Data access is available via the PIONEER Hub for projects which will benefit the public or patients. This can be by developing a new understanding of disease, by providing insights into how to improve care, or by developing new models, tools, treatments, or care processes. Data access can be provided to NHS, academic, commercial, policy and third sector organisations. Applications from SMEs are welcome. There is a single data access process, with public oversight provided by our public review committee, the Data Trust Committee. Contact [email protected] or visit www.pioneerdatahub.co.uk for more details.
Available supplementary data: Matched controls; ambulance and community data. Unstructured data (images). We can provide the dataset in OMOP and other common data models and can build synthetic data to meet bespoke requirements.
Available supplementary support: Analytics, model build, validation & refinement; A.I. support. Data partner support for ETL (extract, transform & load) processes. Bespoke and “off the shelf” Trusted Research Environment (TRE) build and run. Consultancy with clinical, patient & end-user and purchaser access/ support. Support for regulatory requirements. Cohort discovery. Data-driven trials and “fast screen” services to assess population size.
Further information including technical details, coverage, format and standards, provenance and related resources can be found on the link below: https://healthdatagateway.org/en/dataset/945
