The NHS long term plan highlights the need for better care for common long-term conditions. With advances in prevention and medical care the UK mortality rate from heart diseases has declined by more than three quarters in the last 40 years. But cardiovascular disease remains the biggest cause of premature death. Furthermore, chest pain remains the commonest cause of presentation to acute medical services (up to 40% of unscheduled admissions). It is known that older adults can have atypical presentations of myocardial infarctions, leading to diagnostic delay and poorer outcomes. Care models to rapidly treat older people with suspected heart disease remain a priority across services.
This highly granular dataset includes 16,638 patients aged 65 and over attending an Emergency Department or Acute Medical Unit with a possible myocardial infarction. It contains demographics, comorbidities, presenting symptoms, serial physiology, acuity, lab results, imaging, ECGs, procedures, medications (dose and route), onward care journeys, mortality, and readmissions. While this subset focuses on older adults, a full dataset covering all ages is also available.
Geography: The West Midlands has a population of 6 million & includes a diverse ethnic & socio-economic mix. UHB is one of the largest NHS Trusts in England, providing direct acute services & specialist care across four hospital sites, with 2.2 million patient episodes per year, 2750 beds & > 120 ITU bed capacity. UHB runs a fully electronic healthcare record (EHR) (PICS; Birmingham Systems), a shared primary & secondary care record (Your Care Connected) & a patient portal “My Health”.
Data set availability: Data access is available via the PIONEER Hub for projects which will benefit the public or patients. This can be by developing a new understanding of disease, by providing insights into how to improve care, or by developing new models, tools, treatments, or care processes. Data access can be provided to NHS, academic, commercial, policy and third sector organisations. Applications from SMEs are welcome. There is a single data access process, with public oversight provided by our public review committee, the Data Trust Committee. Contact [email protected] or visit www.pioneerdatahub.co.uk for more details.
Available supplementary data: Matched controls; ambulance and community data. Unstructured data (images). We can provide the dataset in OMOP and other common data models and can build synthetic data to meet bespoke requirements.
Available supplementary support: Analytics, model build, validation & refinement; A.I. support. Data partner support for ETL (extract, transform & load) processes. Bespoke and “off the shelf” Trusted Research Environment build and run. Consultancy with clinical, patient & end-user and purchaser access/ support. Support for regulatory requirements. Cohort discovery. Data-driven trials and “fast screen” services to assess population size.
Further information including technical details, coverage, format and standards, provenance and related resources can be found on the link below: https://healthdatagateway.org/en/dataset/1017
