Community acquired pneumonia (CAP) is a leading cause of hospital admission and has high rates of mortality and complications, especially in older people. Data from PIONEER examining CAP admissions in winter 19/20 and winter 20/21 demonstrated that hospital admissions due to CAP fell by 40% in 20/21 compared to 19/20 but the 30-day mortality rate almost doubled in winter 20/21 compared to 19/20. Frailty was thought to be a determinant of poor outcomes.
To explore this further, PIONEER, working with the NIHR Midlands Biomedical Research Centre Infections and acute care theme, have curated a highly granular dataset of 1,701 community acquired pneumonia admissions for a focused cohort of adults aged 65 years old and over. The data includes demography, comorbidities, Charlson comorbidity index, Manchester mobility score (MMS), clinical frailty score (CFS) and symptoms on presentation, serial physiology and acuity, investigations, CURB-65 assessments, intensive care, treatments (drug, dose, route), diagnostic codes (ICD-10 & SNOMED-CT), outcomes (death and readmissions).
Geography: The West Midlands (WM) has a population of 6 million & includes a diverse ethnic & socio-economic mix. UHB is one of the largest NHS Trusts in England, providing direct acute services & specialist care across four hospital sites, with 2.2 million patient episodes per year, 2750 beds & > 120 ITU bed capacity. UHB runs a fully electronic healthcare record (PICS; Birmingham Systems), a shared primary & secondary care record (Your Care Connected) & a patient portal “My Health”.
Data set availability: Data access is available via the PIONEER Hub for projects which will benefit the public or patients. This can be by developing a new understanding of disease, by providing insights into how to improve care, or by developing new models, tools, treatments, or care processes. Data access can be provided to NHS, academic, commercial, policy and third sector organisations. Applications from SMEs are welcome. There is a single data access process, with public oversight provided by our public review committee, the Data Trust Committee. Contact [email protected] or visit www.pioneerdatahub.co.uk for more details.
Available supplementary data: Matched controls; ambulance and community data. Unstructured data (images). We can provide the dataset in OMOP and other common data models and can build synthetic data to meet bespoke requirements.
Available supplementary support: Analytics, model build, validation & refinement; A.I. support. Data partner support for ETL (extract, transform & load) processes. Bespoke and “off the shelf” Trusted Research Environment build and run. Consultancy with clinical, patient & end-user and purchaser access/ support. Support for regulatory requirements. Cohort discovery. Data-driven trials and “fast screen” services to assess population size.
Further information including technical details, coverage, format and standards, provenance and related resources can be found on the link below: https://healthdatagateway.org/en/dataset/1013
