Improving outcomes for people with multiple long term conditions is a priority as set out in the NHS long term plan. ADMISSION is a Research Collaborative funded by UK Research and Innovation and the National Institute for Health Research and Care Research that brings together scientists, clinicians and patients from five UK universities and hospitals (Newcastle University and Newcastle Hospitals NHS Foundation Trust, University of Birmingham (PIONEER – the Health Data Research UK Acute Care Hub), Manchester Metropolitan University, University of Dundeeand University College London) to transform understanding of multiple long-term conditions in hospital patients.
As part of this, PIONEER has curated a highly granular dataset of 119,815 unique hospitalised patients focusing on the impact of multiple long term conditions. The data includes admission details, demography, initial presentation, presenting symptoms, diagnoses, treatments, therapy, medications, imaging, wards, investigations, procedures, operations and outcomes. The current dataset includes admissions from 01-01-2000 to 07-02-2024 but can be expanded to assess other timelines of interest.
Geography: The West Midlands (WM) has a population of 6 million & includes a diverse ethnic & socio-economic mix. UHB is one of the largest NHS Trusts in England, providing direct acute services & specialist care across four hospital sites, with 2.2 million patient episodes per year, 2750 beds & > 120 ITU bed capacity. UHB runs a fully electronic healthcare record (EHR) (PICS; Birmingham Systems), a shared primary & secondary care record (Your Care Connected) & a patient portal “My Health”.
Data set availability: Data access is available via the PIONEER Hub for projects which will benefit the public or patients. This can be by developing a new understanding of disease, by providing insights into how to improve care, or by developing new models, tools, treatments, or care processes. Data access can be provided to NHS, academic, commercial, policy and third sector organisations. Applications from SMEs are welcome. There is a single data access process, with public oversight provided by our public review committee, the Data Trust Committee. Contact [email protected] or visit www.pioneerdatahub.co.uk for more details.
Available supplementary data: Matched controls; ambulance and community data. Unstructured data (images). We can provide the dataset in OMOP and other common data models and can build synthetic data to meet bespoke requirements.
Available supplementary support: Analytics, model build, validation & refinement; A.I. support. Data partner support for ETL (extract, transform & load) processes. Bespoke and “off the shelf” Trusted Research Environment (TRE) build and run. Consultancy with clinical, patient & end-user and purchaser access/ support. Support for regulatory requirements. Cohort discovery. Data-driven trials and “fast screen” services to assess population size.
Further information including technical details, coverage, format and standards, provenance and related resources can be found on the link below: https://healthdatagateway.org/en/dataset/174
