- Introduction
- Data Coverage
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Asthma is common disease and can be life threatening. Exacerbations of asthma are one of the leading causes of unplanned hospitalisation globally and represent a substantial healthcare burden. Exacerbations are also associated with a decline in lung function. Because of this, researchers, policy makers and clinicians have focused treatment plans on preventing and managing exacerbations. Despite this, outcomes remain poor.
Drivers of frequent exacerbations include poor compliance with therapy, a lack of asthma exacerbation plans and inadequate treatment. There are also some biological drivers of frequent exacerbations such as small airways disease and specific types of airways inflammation.
This granular dataset contains 48,042 patients admitted with Asthma Exacerbation curated by PIONEER. The data includes demographics, Vital signs (e.g. oxygen saturation, heart rate, respiratory rate, peak flow rate), Comorbidities, assessments (e.g. smoking), lab sample results (e.g. eosinophil counts and inflammatory markers), Imaging, lung function tests, medications and outcomes such as intensive care, outpatient admissions, mortality and readmissions.
Geography: The West Midlands has a population of 6 million & includes a diverse ethnic & socio-economic mix. UHB is one of the largest NHS Trusts in England, providing direct acute services & specialist care across four hospital sites, with 2.2 million patient episodes per year, 2750 beds & > 120 ITU bed capacity. UHB runs a fully electronic healthcare record (EHR) (PICS; Birmingham Systems), a shared primary & secondary care record (Your Care Connected) & a patient portal “My Health”.
Data set availability: Data access is available via the PIONEER Hub for projects which will benefit the public or patients. This can be by developing a new understanding of disease, by providing insights into how to improve care, or by developing new models, tools, treatments, or care processes. Data access can be provided to NHS, academic, commercial, policy and third sector organisations. Applications from SMEs are welcome. There is a single data access process, with public oversight provided by our public review committee, the Data Trust Committee. Contact pioneer@uhb.nhs.uk or visit www.pioneerdatahub.co.uk for more details.
Available supplementary data: Matched controls; ambulance and community data. Unstructured data (images). We can provide the dataset in OMOP and other common data models and can build synthetic data to meet bespoke requirements.
Available supplementary support: Analytics, model build, validation & refinement; A.I. support. Data partner support for ETL (extract, transform & load) processes. Bespoke and “off the shelf” Trusted Research Environment build and run. Consultancy with clinical, patient & end-user and purchaser access/ support. Support for regulatory requirements. Cohort discovery. Data-driven trials and “fast screen” services to assess population size.
