- Introduction
- Data Coverage
- Further Details
- Request Access
The NHS long term plan highlights the need for better care for common long-term conditions. With advances in prevention and medical care the UK mortality rate from heart diseases has declined by more than three quarters in the last 40 years. But cardiovascular disease remains the biggest cause of premature mortality and the rate of improvement has slowed. Furthermore, chest pain remains the commonest cause of presentation to acute medical services (up to 40% of unscheduled admissions). Care models to identify and rapidly provide treatment to people with suspected heart disease remain a priority across services. This highly granular dataset includes 43,587 patients attending an Emergency Department or Acute Medical Unit with a possible myocardial infarction. The data includes demographics, comorbidities, presenting symptoms, serial physiology and acuity, laboratory results, imaging, ECGs, procedures, medications (dose and route), onward care journeys, mortality and readmission. 
Geography: The West Midlands (WM) has a population of 6 million & includes a diverse ethnic & socio-economic mix. UHB is one of the largest NHS Trusts in England, providing direct acute services & specialist care across four hospital sites, with 2.2 million patient episodes per year, 2750 beds & > 120 ITU bed capacity. UHB runs a fully electronic healthcare record (EHR) (PICS; Birmingham Systems), a shared primary & secondary care record (Your Care Connected) & a patient portal “My Health”. Data set availability: Data access is available via the PIONEER Hub for projects which will benefit the public or patients. This can be by developing a new understanding of disease, by providing insights into how to improve care, or by developing new models, tools, treatments, or care processes. Data access can be provided to NHS, academic, commercial, policy and third sector organisations. Applications from SMEs are welcome. There is a single data access process, with public oversight provided by our public review committee, the Data Trust Committee. Contact pioneer@uhb.nhs.uk or visit www.pioneerdatahub.co.uk for more details. Available supplementary data: Matched controls; ambulance and community data. Unstructured data (images). We can provide the dataset in OMOP and other common data models and can build synthetic data to meet bespoke requirements. Available supplementary support: Analytics, model build, validation & refinement; A.I. support. Data partner support for ETL (extract, transform & load) processes. Bespoke and “off the shelf” Trusted Research Environment (TRE) build and run. Consultancy with clinical, patient & end-user and purchaser access/ support. Support for regulatory requirements. Cohort discovery. Data-driven trials and “fast screen” services to assess population size.
